|Institution web page||https://www.bsms.ac.uk/about/contact-us/staff/dr-nicolas-farina.aspx|
|Host institution||London School of Economics and Political Science|
|Team members||Nicolas Farina, Roxanne Jacobs, Tara Sani, Marguerite Schneider, Imelda Theresia, Yuda Turana, Emiliano Albanese, Sumaiyah Docrat, Petra Du Toit, Cleusa Ferri, Ishtar Govia, Adelina Comas-Herrera, Aliaa Ibnidris, Klara Lorenz-Dant, Martin Knapp & Sube Banerjee|
|Funding information (if funded)||UK Research and Innovation’s Global Challenges Research Fund (ES/P010938/1)|
Few low- and middle-income countries have data on dementia prevalence obtained directly from their own populations. One element of the STRiDE programme (STrengthening Responses to dementia In DEveloping countries, www.stride-dementia.org/) aims to fill this gap by generating new prevalence evidence in two (South Africa and Indonesia) of the seven STRiDE countries (Brazil, India, Indonesia, Jamaica, Kenya, Mexico, and South Africa). STRiDE is designed to support and accelerate the development of effective dementia policy and national planning in these seven countries and a toolkit that can be applied in other low- and middle-income countries, with the ultimate goal of improving dementia care, treatment and support systems so that people with dementia are able to live well.
Within the prevalence study, 4,400 older adults (and an informant/carer) will be recruited from sites in Indonesia (n=2,200) and South Africa (n=2,200). Whilst the primary outcome will the estimated prevalence of dementia within each country, participants will be asked questions across the following 11 domains: (i) dementia staging, (ii) cognitive measures, (iii) socio-demographics, (iv) costings, (v) activities of daily living and disability, (vi) neuropsychiatric symptoms and depression, (vii) generic quality of life and wellbeing, (viii) disease specific quality of life, (ix) carer burden, (x) stigma, and (xi) elder abuse.
Within some of these domains we will also ask a series of questions related to the impact of COVID-19 on participants’ (e.g. person with dementia and carer) lives, including:
|Outputs / Expected Outputs|
KEYWORDS / CATEGORIES
|Countries||Indonesia | South Africa|
|Care setting||Community-based care/care at home|
|Impact/outcomes||Cost and other financial impacts | COVID-19 Infection rates | Wellbeing and quality of life|
|Groups/organisations||Older people | People with dementia | Unpaid carers|