Study looking for participants: international survey of family carers of people living with dementia (CLIC)

CLIC (Coping with Loneliness, Isolation and Covid-19)


Prof. Iracema Leroi, Global Brain Health Institute, Trinity College Dublin (Principal Investigator)

Prof. Brian Lawlor, Global Brain Health Institute, Trinity College Dublin

Dr. Miriam Galvin, Global Brain Health Institute, Trinity College Dublin

Dr. Eimear McGlinchey, Global Brain Health Institute, Trinity College Dublin

Prof. Mary McCarron, School of Nursing, & Midwifery, Trinity College Dublin

Dr. Carol Rogan, Dementia Research Network Ireland, Trinity College Dublin

Prof Roger O’Sullivan, Institute of Public Health, University of Ulster (Global CLIC Lead)

Note: This is a sub-study of a larger global CLIC study being undertaken by a group of International academic researchers who are part of the International Loneliness and Isolation research NetworK (I-LINK)

The Study

The Covid-19 pandemic has changed our lives in so many ways, and it has been particularly challenging for people living with dementia and their families. To date, the impact on family carers is not known and therefore we are disseminating an international survey to hear the voices of carers & families and learn about their experiences during the pandemic.

We invite family carers of people with dementia to take part in a short online anonymous survey to share their experiences. Carers can offer invaluable insights into life before and during the Covid-19 pandemic, including key challenges and coping strategies. Through understanding the impact of COVID-19 on carers and families of people with dementia, we aim to influence policy, community and agency response.

The survey is open to anyone over 18 yrs of age who has access to the internet and it is available in the following languages: English, French, Spanish, Greek, Finnish, Portugese (Brazilian), Arabic, Romanian and Bengali. The survey is being circulated globally and therefore results will give us a unique insight into family carers’ experiences in different countries and at different stages of the COVID-19 pandemic.

Click here to undertake the survey

Click here to read more about the study and those involved.

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