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Impact of COVID-19 public health measures on the life and wellbeing and access to care and support of people living with dementia and care partners in Australia

Project statusOngoing
Contact Yun-Hee Jeon
Institution web pagehttps://www.sydney.edu.au/medicine-health/about/our-people/academic-staff/yun-hee-jeon.html
Host institution The University of Sydney
Team members Yun-Hee Jeon, Mirim Shin, Donna Waters, Elizabeth Beattie, Henry Brodaty, Tony Hobbs, Kaele Stokes, Jason Burton, Sue Kurrle, Fran McInery, Jane Thompson, and Kimberley Bassett.
Funding information (if funded) None
Project Summary

The aims of this study are, from the perspectives of those with the lived experience, to examine the impact of COVID-19
public health measures on the life and wellbeing and access to care and support of people living with dementia and their care partners
(family, friends and other informal carers); and identify key issues and challenges as well as key lessons in terms of what
worked well, what did not, what was helpful and what was not.

METHODS
Design: A repeated cross-sectional survey of people living with dementia and current care partners, complemented by a
follow-up qualitative interview

Participants: People living with dementia and carer partners (families/friends who have primary care responsibility) in Australia

Recruitment: Volunteers from StepUp for Dementia Research and StepUp Champion Organisations (aged care providers and dementia peak bodies).

Data collection: Online and Telephone survey using REDCap (Time 1 in June-July 2020 & Time 2 in mid 2021, and qualitative interview (in August-September 2020).

Outputs / Expected Outputs

The study is ongoing (Time 2 survey to be conducted April-May 2021)

Initial findings have been reported in the Dementia Australia discussion paper: One day the support was gone: The mental health impact of COVID-19 on people living with dementia, their families and carers. https://www.dementia.org.au/sites/default/files/2020-11/PFOD-Discussion-Paper-Nov-2020-ver1.pdf

Project website https://www.stepupfordementiaresearch.org.au/category/in-the-news/

KEYWORDS / CATEGORIES

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Impact of COVID-19 public health measures on the life and wellbeing and access to care and support of people living with dementia and care partners in Australia