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CovId-19 and SOcial isoLATion in dEmentia care (ISOLATE): impact and needs of people with dementia, informal and professional caregivers

Project statusOngoing
Contact Mandy Visser
Institution web pagehttps://www.lumc.nl/org/unc-zh/onderzoek/Kwaliteit-van-leven/ISOLATE-Covid-19socialeisolatiedementie/
Host institution Leiden University Medical Center, Department PHEG
Team members Dr. Mandy Visser Dr Hanneke Smaling Dr. Bram Tilburgs Prof. Wilco Achterberg
Funding information (if funded) This research was supported by the Netherlands Organisation for Health Research and Development (ZonMw) grant number 50-56300-98-533
Project Summary

Social isolation due to COVID-19 restrictive measures appear to have a major influence on the well-being of people with dementia, informal caregivers, and professional caregivers. While loneliness and challenging behavior may increase in people with dementia, social support for informal caregivers is reduced and their burden increases. In addition, rules regarding physical distance and the use of personal protective equipment complicates the work of healthcare professionals.

This study investigates the impact of social isolation during the COVID-pandemic on home-  and long-term care for people with dementia, informal caregivers, and professional caregivers. Interviews with 20 informal caregivers and 20 professional caregivers about their concerns, problems, and needs regarding dementia care and social well-being in times of social isolation will be conducted.

Outputs / Expected Outputs

Expected outputs of the project will be:

  • Insight into the concerns, problems, and needs of people living with dementia, informal caregivers, and professional caregivers in times of social isolation during the COVID-pandemic, in both home- and long-term care.
  • Recommendations for policy that can be applied to home- and long-term care, aimed to optimize social-wellbeing for people with dementia, their informal caregivers, and professional caregivers during isolation.
Project website https://www.lumc.nl/org/unc-zh/onderzoek/Kwaliteit-van-leven/ISOLATE-Covid-19socialeisolatiedementie/

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CovId-19 and SOcial isoLATion in dEmentia care (ISOLATE): impact and needs of people with dementia, informal and professional caregivers