Between July and November 2020, twenty practitioners working in care homes or allied services took part in a series of interviews, focus groups and photovoice exercises in order to communicate their lived experience of the coronavirus pandemic.  Three family members of people with dementia who are or were living in care homes during the pandemic also took part as experts by experience.

A booklet about the study for care homes has been published and can be seen below:

Looking for the light: Findings from the Coronavirus and Dementia in Care homes (CoDeC) Study

https://drive.google.com/file/d/1mjanXZlmGjH2Tf-rs8b4FFPNWj5d50dR/view

A paper has been published by SAGE Research Methods Cases – Doing research online:

Capstick A and Barbosa A (2022 forthcoming), Doing photovoice research online: the experiences of staff working in care homes for people living with dementia during the Covid-19 pandemic. doi.org/10.4135/9781529603729 

Dr Andrea Capstick presented the study at the Alzheimer Europe conference in November 2021, and Dr Ana Barbosa and Dr Capstick also presented at the International Health Practitioners conference in March 2022.

A paper has been accepted for publication by the Journal of Long-term Care:

Capstick, A, Previdoli, G, Barbosa, A and Mason C: Going through the eye of the storm’: the impact of Covid-19 on the long-term dementia care workforce.

A verbatim theatre performance based on the study data took place at the University of Bradford during the UNIfy festival from 26-31 March 2022. A press release and link to the performance can be seen below:

https://www.bradford.ac.uk/news/archive/2022/stage-play-puts-lockdown-dementia-issue-in-spotlight.php

The research team and a number of participants have contributed to a regular blog series on various aspects of coronavirus and dementia in care homes which can be found here http://blogs.brad.ac.uk/dementia/category/codec/.