INTERNATIONAL REPORTS

Response from India

There is no formal or organized public LTC system in India, however a number of schemes cover some aspects of care for older people or people with disabilities and mental health conditions. Families (particularly women) are the main source of care, as well as untrained care workers such as “home attenders”. There are some formal care services available, mostly provided by private and not-for-profit organisations (source: https://ltccovid.org/wp-content/uploads/2020/05/LTC-COVID-situation-in-India-30th-May.pdf).

1.02.-India-20210803

Last updated: August 3rd, 2021

Public funding for LTC is very limited, but there are a few public benefit schemes such as disability benefits and pension schemes that offer modest support. Most formal LTC is paid for through out of pocket payments (source: https://ltccovid.org/wp-content/uploads/2020/05/LTC-COVID-situation-in-India-30th-May.pdf).

1.03.-India-20210802

Last updated: August 2nd, 2021

Dated:  20210319

Unpaid carers worried about protecting their relatives with dementia, keeping the occupied inside the house and adhering to hygiene measures. Unpaid carers found working and caring challenging and expressed concerns about financial implications. Formal and informal networks were less well accessible and there was difficulty in accessing medical care (Sources: https://journal.ilpnetwork.org/articles/10.31389/jltc.76/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7340037/).

2.06.-India-20210319

Last updated: August 3rd, 2021

Dated:  20210319

India’s vaccination programme for those 60 and older, and those deemed 45+ and high risk, began on March 1st, 2021. This coincided with the opening of a partially private market (e.g. vaccination out of pocket): approximately 10,000 government centres nationwide are offering free vaccinations, and 20,000 private hospitals charge the state-fixed rate of 250 rupees ($4.57). Over 12 million health, long term, and frontline workers have already been vaccinated through the state-funded program

(Sources: https://www.bloomberg.com/news/articles/2021-02-24/india-to-start-giving-covid-19-shots-to-the-elderly-at-a-costhttps://www.straitstimes.com/asia/south-asia/indias-covid-19-vaccination-for-senior-citizens-launches-to-relief-and-confusion).

3.11.-India-

Last updated: September 7th, 2021

Dated:  20210319

Organisations in India provide COVID-19 information for people with disabilities/LTC needs and their family carers. One organisation has developed an app to enable family carers to access expert advice. The Ministry of Health and Family Welfare provided online medication, yoga videos, advice on mental health support and a psychosocial behavioural helpline. Some states have set up dedicated services (helplines) and organisations have implemented virtual interventions. Guidelines by the Ministry of Social Justice and Empowerment state that family carers should be issued with travel passes (https://ltccovid.org/wp-content/uploads/2020/05/LTC-COVID-situation-in-India-30th-May.pdf).

3.12.-India-

Last updated: September 7th, 2021

    Understanding how COVID-19 shapes the costs and consequences of providing unpaid care for people with dementia: Part of the Strengthening responses to dementia in developing countries (STRiDE) Project

    Last updated: June 10th, 2021

      Long-term psychological impacts of COVID-19 public health measures on older people and those with dementia in low- and middle-income countries

      Last updated: January 14th, 2021

        The impacts of COVID-19 public health measures on people living with dementia in the community and unpaid carers – An international 5-country study (Australia, India, Italy, Poland and UK)

        Last updated: December 5th, 2020

          Experiences and needs of caregivers of persons with dementia during the COVID-19 pandemic and lockdown in a city in India

          Last updated: December 5th, 2020